malaise: bloods and cripples
I had my blood counts taken last thursday, and was not at all surprised to learn that I am anemic as all hell...the leaden legs and gasping for air after a mere 10 minutes of running was tipping me off to that little factoid. I was injected with some marrow stimulator to force the creation of the little red bastards that seeem to be dying off in droves, just like the other victims of taxol tyranny, my eyebrows, facial skin and, patience.
I am impatient as hell. The worse I feel, the meaner I feel. Healthy folk walk around me in droves on my daily commute. They get in my way like bland, wide, tanks, feeling no pain and wondring vaguely what delightful thing they are going to do that evening. They toss their glossy locks and smooth their crisp suits, worrying about office politics or dinner parties. They talk too loud. Even when they grimly punch their blackberries, it is declamatory. It is overt. It screams of health and life and things being done, worlds moving, birth, life, work....but never death.
And I'm the death's head that moves among them. I'm the alien. I'm so tired I can barely walk and I'm fighting for position in the subway, running for the train, acting like I'm healthy and competent and of this world. My choice, I know. I mean, I could stay at home more. I could act more like a cripple. I could go bald and paint a big old skull and crossbones, or maybe a hazmat sign on my forehead just so humans would give me a wide berth. I could whine more at work. I could play the cancer card...
Or...could I? Let's be realistic. I have great insurance which is affording me the best in cancer care. I am relatively new at my job (i started in January). Could I really jeopardize that? Knowing what I know about being uninsured here in Amurka? (both firsthand, and from taking Poverty Law with a really cool, "fellow-traveler" type law prof?). Can I hear you folks? Can I get a resounding "NO!" I mean, HELL no. I cannot. So I do what I do. And I run to keep sane, and even that pleasure burns and seeths with fear and despair.
And YEAH, I know it's almost over, at least the chemo part is. But, this thing changes you. Try feeling like shit for 6 months straight. And feeling fear the rest of your life. And don't make light of it, and don't tell me that many people have it worse, and I'm just projecting health on people who may or may not have it. I don't give a flying fuck. I know all that. I know I'm lucky.
But DAMN folks, it's dark in here right now...
I am impatient as hell. The worse I feel, the meaner I feel. Healthy folk walk around me in droves on my daily commute. They get in my way like bland, wide, tanks, feeling no pain and wondring vaguely what delightful thing they are going to do that evening. They toss their glossy locks and smooth their crisp suits, worrying about office politics or dinner parties. They talk too loud. Even when they grimly punch their blackberries, it is declamatory. It is overt. It screams of health and life and things being done, worlds moving, birth, life, work....but never death.
And I'm the death's head that moves among them. I'm the alien. I'm so tired I can barely walk and I'm fighting for position in the subway, running for the train, acting like I'm healthy and competent and of this world. My choice, I know. I mean, I could stay at home more. I could act more like a cripple. I could go bald and paint a big old skull and crossbones, or maybe a hazmat sign on my forehead just so humans would give me a wide berth. I could whine more at work. I could play the cancer card...
Or...could I? Let's be realistic. I have great insurance which is affording me the best in cancer care. I am relatively new at my job (i started in January). Could I really jeopardize that? Knowing what I know about being uninsured here in Amurka? (both firsthand, and from taking Poverty Law with a really cool, "fellow-traveler" type law prof?). Can I hear you folks? Can I get a resounding "NO!" I mean, HELL no. I cannot. So I do what I do. And I run to keep sane, and even that pleasure burns and seeths with fear and despair.
And YEAH, I know it's almost over, at least the chemo part is. But, this thing changes you. Try feeling like shit for 6 months straight. And feeling fear the rest of your life. And don't make light of it, and don't tell me that many people have it worse, and I'm just projecting health on people who may or may not have it. I don't give a flying fuck. I know all that. I know I'm lucky.
But DAMN folks, it's dark in here right now...
Labels: cancer
6 Comments:
At 8:09 AM, mcuster said…
Hang in there sister. I know exactly what you mean and what you're going through. My last chemo is this Thursday and I'm getting more anxious and grumpier as time goes on. It's all so unfair. I can barely stand to watch those damn shampoo commercials.
I went anemic also, about 2 weeks ago.
I'm impressed that you can even job. My legs kill me to go up the stairs.
Just hold on and be patient. I know it's hard but we're near the finish line with this thing. i still have to go through radiation but it least it won't be chemo.
Take Care.
Marilyn
At 1:59 PM, mispris said…
I love your blog! I know it's hard for you and it really changes you, but just know that there are even total strangers out there sending you positive vibes!
At 12:56 PM, Anonymous said…
What if you could have fun while helping others? Throw a DOMINO Passionately Pink House Party™ with your friends during Breast Cancer Awareness Month.
House Party Inc. in conjunction with DOMINO magazine wants you to throw the ultimate fun, stylish party (in every shade of pink) on October 28th. It’s a great way to socialize while supporting a worthwhile cause. Each attendee pays a $20.00 registration fee and receives a gift bag that includes a year subscription to DOMINO and access to special contests and prizes through the event’s site. For each paid attendee, $5.00 will go to the Susan G. Komen Breast Cancer Foundation.
Best of all it’s easy to host – just visit www.houseparty.com, fill out an online application and if chosen you’ll get all the support you need, including your own party website with tools to manage the event. Comprehensive planning guides to assist party hosts, including entertaining tips, recipes and home decorating suggestions will be furnished by DOMINO. Of course, you can make the party truly your own by inviting guest speakers including breast cancer survivors and specialists, creating a theme such as “Pretty in Pink” where your guests dress only in pink or throwing a Pink Yoga party!
Join our community at www.houseparty.com/domino and help support the fight to end breast cancer! Together we can move one step closer to wiping out breast cancer.
At 8:52 PM, abigail said…
sorry anonymous...i don't have friends and i don't like throwing parties. I'd rather watch star trek with my cats...
At 9:57 PM, mcuster said…
That domino thing was weird. I like Star Trek too. Good luck tomorrow, hope it goes well. I'm going to try and talk the nurse out of the neulasta shot. I don't see why I have to take the stupid thing since it's my last chemo.
I found out I have to do 34 radiation treatments, 5 days a week except weekends. Grrrrr. I've also been told I can't/shouldn't wear a bra during this. Great, my boobs will be hanging down by my belly button. I don't know yet when this starts, I have a simulation next Thursday.
At least we won't be poisoned anymore. My big question is when is my hair going to grow back!
At 10:49 AM, Sepha said…
There's nothing quite so tiresome as having to feel *grateful* all the damn time. They do things to you that make you feel like hell warmed over and I'M GRATEFUL, damn it! But I still whined like a three-year-old because I felt like shite. It's difficult to feel grateful for no hair, aching, sickness, neutropaenia, being one-breasted etc.
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